PKD Foundation
Meets Standards
Standards For Charity Accountability
Governance
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Board Oversight
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Board Size
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Board Meetings
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Board Compensation
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Conflict of Interest
Measuring Effectiveness
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Effectiveness Policy
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Effectiveness Report
Finances
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Program Expenses
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Fundraising Expenses
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Accumulating Funds
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Audit Report
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Detailed Expense Breakdown
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Accurate Expense Reporting
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Budget Plan
Fundraising & Info
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Truthful Materials
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Annual Report
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Website Disclosures
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Donor Privacy
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Cause Marketing Disclosures
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Complaints
PKD Foundation meets the 20 Standards for Charity Accountability.
Stated Purpose:
"to promote programs of research and education to discover treatments and a cure for PKD."
Year, State Incorporated:
1982, MO
The PKD Foundation works to find a treatment and cure for polycystic kidney disease (PKD) and to improve lives of those it affects. To find a treatment for PKD, the organization promotes research, education, and advocacy. The organization also provides support and awareness on a national level, along with direct services to local communities across the United States. The PKD Foundation reports that it supports more than 55 volunteer-led chapters across the United States through peer mentor programs, hope lines, disease management handbooks, online forums, and webinars. The organization also funds basic and clinical research and nephrology fellowships. Once a year, the PKD Foundation hosts a national conference, PKDcon, to bring together the PKD community of patients, caregivers, volunteers, researchers, and clinicians.
For the year ended June 30, 2022, PKD Foundation's program expenses were:
Research: $3,191,871
Education and support: $1,687,658
Awareness and advocacy: $1,215,137
Total Program Expenses: $6,094,666
Chief Executive
Susan Bushnell, President and Chief Executive Officer
Chair of the Board
Navin Manglani
Chair's Profession / Business Affiliation
Professor of Technology, NYU Stern
Board Size
15
Paid Staff Size
26
*2023 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Note: Ms. Bushnell became President and Chief Executive Officer on February 1, 2023. Compensation information for her role as President and Chief Executive Officer is not available at this time. Former President and Chief Executive Officer, Andrew Betts, received $340,271 in compensation during 2021.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals, Radio, Special events, Telemarketing
Fundraising costs were 5% of related contributions. (Related contributions, which totaled $18,302,499, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on PKD Foundation's audited financial statements for the year ended June 30, 2022.
Source of Funds
| Investment return, net | $342,611 |
| Unrealized loss on investment, net | $-3,171,515 |
| Other income | $475,011 |
| Contributions | $17,905,630 |
| In-kind contributions | $396,869 |
| Total Income | $15,948,606 |
Programs: 76% Fundraising: 11% Administrative: 13%
| Total Income | $15,948,606 |
| Total expenses: | $8,005,490 |
| Program expenses | $6,094,666 |
| Fundraising expenses | $847,708 |
| Administrative expenses | $1,063,116 |
| Other expenses | $0 |
| Income in Excess of Expenses | $7,943,116 |
| Beginning Net Assets | $22,549,669 |
| Other Changes In Net Assets | $0 |
| Ending Net Assets | $30,492,785 |
| Total Liabilities | $620,624 |
| Total Assets | $31,113,409 |
Note: According to the organization's audited financial statements for the year ended June 30, 2022, the PKD Foundation received in-kind gifts totaling $396,869 in the form of services ($380,109) and special event goods ($16,760).
An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.
This report is not to be used for fundraising or promotional purposes.
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Meets Standards
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Standards Not Met
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Review in Progress
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Report completed by:
BBB Wise Giving Alliance