-
Year, State Incorporated
1985, DE
-
Also Known As
Amyotrophic Lateral Sclerosis Association
-
-
Stated Purpose
"to lead the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support."
ALS Association/Amyotrophic Lateral Sclerosis Association (ALSA) fights Lou Gehrig's Disease through global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships. The organization aims to build hope and enhance quality of life while aggressively searching for new treatments and a cure. ALSA reports that it has awarded research funding to help increase the number of scientists working on ALS, advanced new discoveries and treatments, and shed light on the complex genetic and environmental factors involved in ALS. In addition, ALSA brings researchers and investigators together to exchange information on progress in research and treatment methodologies. The organization's chapters work in communities throughout the U.S. to help patients and families cope with the day-to-day challenges of living with ALS by providing information, care services and local referrals to multidisciplinary ALS certified centers and clinics.
For the year ended January 31, 2019, ALS Association's program expenses were:
Research grants |
$15,436,780 |
Patient and community services |
$9,144,294 |
Public and professional education |
$9,035,061 |
Total Program Expenses: |
$33,615,135 |
-
Chief Executive
Calaneet Balas, President and CEO
-
Compensation*
$312,711
-
Chair of the Board
Sue Gorman
-
Chair's Profession / Business Affiliation
Principal owner - Sue Gorman Interior Designs
-
Board Size
25
-
Paid Staff Size
65
*2018 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Invitations to fund raising events, Planned giving arrangements, Telephone appeals, Cause- related marketing (affinity credit cards, consumer product sales, etc.)
ALS Association / Amyotrophic Lateral Sclerosis Association incurred joint costs of $1,477,000 for informational materials and activities that included fund raising materials. Of those costs, $1,227,000 was allocated to fund raising expenses and $250,000 was allocated to program expenses.
Fundraising costs were 18% of related contributions. (Related contributions, which totaled $24,656,948, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c) (3) of the Internal Revenue Code.It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on ALS Association's audited financial statements for the year ended January 31, 2019.
Source of Funds |
Contributions |
$16,188,676 |
Chapter revenue |
$10,317,184 |
Contributed services and public service announcements |
$5,744,096 |
Events, net of expenses |
$1,422,885 |
Bequests |
$1,141,332 |
Other income |
$203,001 |
Federated campaigns |
$153,834 |
Changes in perpetual trusts and split interest agreements |
$6,125 |
Investment loss |
($755,216) |
Total Income |
$34,421,917 |
- Programs: 84%
- Fundraising: 10%
- Administrative: 6%
Total Income |
$34,421,917 |
Program expenses |
$33,615,135 |
Fundraising expenses |
$4,353,885 |
Administrative expenses |
$2,461,072 |
Other expenses |
$0 |
Total expenses: |
$40,431,092 |
Income in Excess of Expenses |
$-6,009,175 |
Beginning Net Assets |
$96,447,890 |
Other Changes In Net Assets |
$0 |
Ending Net Assets |
$90,438,715 |
Total Liabilities |
$5,877,998 |
Total Assets |
$96,316,713 |
Note: For the year ended January 31, 2019, ALSA reported in-kind contributions totaling $5,744,000 including donated PSAs ($5,339,000) and data analysis services ($405,000).