Parent Project for Muscular Dystrophy Research meets the 20 Standards for Charity Accountability.
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Year, State Incorporated
1994, OH
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Stated Purpose
"to end Duchenne; to accelerate research, impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies."
Parent Project for Muscular Dystrophy (PPMD) works to end Duchenne muscular dystrophy by funding research, spreading awareness, and providing care and services to people impacted by the disease. The organization educates parents, healthcare providers, and the general public about muscular dystrophy through conferences, pamphlets, and brochures. PPMD reports that it provides free genetic testing and counseling to people with Duchenne or Becker muscular dystrophy who otherwise could not afford genetic testing. In 2019, the organization reports that it certified its 25th PPMD Certified Duchenne Care Center and launched its Duchenne Newborn Screening program in New York state.
For the year ended December 31, 2018, Parent Project for Muscular Dystrophy Research's program expenses were:
Research |
$5,567,449 |
Education |
$1,453,468 |
Advocacy |
$512,130 |
Total Program Expenses: |
$7,533,047 |
*2018 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Invitations to fund raising events, Cause- related marketing (affinity credit cards, consumer product sales, etc.)
Fundraising costs were 8% of related contributions. (Related contributions, which totaled $8,627,307, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c) (3) of the Internal Revenue Code.It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Parent Project for Muscular Dystrophy Research's audited financial statements for the year ended December 31, 2018.
Source of Funds |
Contributions |
$6,293,312 |
Grants |
$1,317,052 |
Special events, net |
$1,016,943 |
Conference income |
$319,960 |
Fees for service |
$123,539 |
Investment income |
$353 |
Total Income |
$9,071,159 |
- Programs: 87%
- Fundraising: 8%
- Administrative: 5%
Total Income |
$9,071,159 |
Program expenses |
$7,533,047 |
Fundraising expenses |
$691,616 |
Administrative expenses |
$463,572 |
Other expenses |
$0 |
Total expenses: |
$8,688,235 |
Income in Excess of Expenses |
$382,924 |
Beginning Net Assets |
$3,386,069 |
Other Changes In Net Assets |
$0 |
Ending Net Assets |
$3,768,993 |
Total Liabilities |
$1,963,776 |
Total Assets |
$5,732,769 |