National Bleeding Disorders Foundation
Meets Standards
Standards For Charity Accountability
Governance
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Board Oversight
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Board Size
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Board Meetings
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Board Compensation
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Conflict of Interest
Measuring Effectiveness
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Effectiveness Policy
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Effectiveness Report
Finances
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Program Expenses
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Fundraising Expenses
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Accumulating Funds
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Audit Report
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Detailed Expense Breakdown
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Accurate Expense Reporting
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Budget Plan
Fundraising & Info
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Truthful Materials
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Annual Report
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Website Disclosures
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Donor Privacy
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Cause Marketing Disclosures
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Complaints
National Bleeding Disorders Foundation meets the 20 Standards for Charity Accountability.
Stated Purpose:
"to find better treatments and cures for inheritable blood and bleeding disorders and to address and prevent the complications of these disorders through research, education, and advocacy, enabling people and families to thrive."
Year, State Incorporated:
1948, NY
Also Known As:
National Hemophilia Foundation
The National Bleeding Disorders Foundation (NBDF) reports that it supports research that has a measurable impact on people's lives; delivers education that helps people with bleeding disorders and their family members thrive; and advocates for policies at the state and local level that protect access to healthcare. The organization's research program supports basic science research, innovative investigators, and NIH bridge grants, among others. Through NBDF's fellowships, the organization supports hematologists, nurses, social workers, and physical therapists who provide care to people with blood or bleeding disorders. The organization's Medical and Scientific Advisory Council (MASAC) issues recommendations and advisories on treatment, research, and other general health concerns. NBDF holds an annual conference to provide education to providers and maintains a clinical fellowship program to encourage researchers to investigate areas that can improve care. The organization hosts an annual bleeding disorders advocacy event in Washington, DC, and works to ensure that the nation's blood supply and blood products remain safe. At the state level, NBDF works with chapters to train advocates, identify issues regarding access to care, and trains state-based advocacy coalitions to work together to advocate with state legislatures.
For the year ended December 31, 2024, National Bleeding Disorders Foundation's program expenses were:
Health education and training: $5,500,313
Community services: $4,191,067
Chapter services: $1,606,409
Research: $3,320,289
Total Program Expenses: $14,618,078
Chief Executive
Philip M. Gattone, President and Chief Executive Officer
Chair of the Board
Ryan Griffith
Chair's Profession / Business Affiliation
Co-Founder and Owner/Operator, Social Pet Hotel & Daycare, Carolina Socials Catering, and Marble Slab Creamery franchises, North and South Carolina
Board Size
13
Paid Staff Size
79
*2023 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Note: Mr. Gattone's compensation is not currently available, as he started with NBDF in 2024. In 2023, the highest compensated employee was former President and Chief Executive Officer, Leonard Valentino, who received $419,563.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals, Radio, Special events, Telemarketing, Print advertisements, Corporate solicitation
Fundraising costs were 13% of related contributions. (Related contributions, which totaled $11,531,380, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on National Bleeding Disorders Foundation's audited financial statements for the year ended December 31, 2024.
Source of Funds
| Contributions from independent chapters | $30,411 |
| Educational seminars and programs | $2,538,696 |
| Educational and medical literature | $867,619 |
| Legacies and bequests | $209,514 |
| Other income | $11,625 |
| Special events revenue | $512,072 |
| Contributions and grants | $10,261,920 |
| Government grants | $547,874 |
| Return on Investments | $2,425,175 |
| Total Income | $17,404,906 |
Programs: 74% Fundraising: 8% Administrative: 18%
| Total Income | $17,404,906 |
| Total expenses: | $19,740,734 |
| Program expenses | $14,618,078 |
| Fundraising expenses | $1,501,569 |
| Administrative expenses | $3,621,087 |
| Other expenses | $0 |
| Income in Excess of Expenses | $-2,335,828 |
| Beginning Net Assets | $29,699,973 |
| Other Changes In Net Assets | $0 |
| Ending Net Assets | $27,364,145 |
| Total Liabilities | $3,449,324 |
| Total Assets | $30,813,469 |
An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.
This report is not to be used for fundraising or promotional purposes.
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Standards Not Met
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Review in Progress
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Unable to Verify
Report completed by:
BBB Wise Giving Alliance