National Alopecia Areata Foundation meets the 20 Standards for Charity Accountability.
National Alopecia Areata Foundation (NAAF) reports that it supports research to find a cure or treatment for alopecia areata. NAAF states that its research program directs and funds research to find safe, effective treatments, and a cure. The research program aids in hosting research summits, which brings together medical professionals to advance research. The organization also funds and manages the Alopecia Areata Registry, Biobank and Clinical Trials Network, a collection of alopecia areata data and biological samples. NAAF reports that it provides support through local programs operating in 94 cities across the United States. Support materials include: brochures, a school guide and DVD, a cosmetic toolkit, and an insurance packet. The organization operates an online community for individuals of all ages, Smart Patients. NAAF also works to educate the community and policymakers about alopecia areata and its effects on patients and their families. The organization states that it has 244 volunteer legislative liaisons in 42 states. In 2018, NAAF reports that its support groups helped 1,447 individuals, that the organization hosted 691 individuals at its annual conference, had 148 mentors and 107 mentees participate in its youth mentor program, helped 133 individuals purchase wigs through grants, and awarded 7 grants towards the study of basic, translational, and clinical research.
For the year ended December 31, 2018, National Alopecia Areata Foundation's program expenses were:
Support and education |
$1,046,710 |
Treatment development |
$765,242 |
Awareness and advocacy |
$277,957 |
Total Program Expenses: |
$2,089,909 |
-
Chief Executive
Dory Kranz, President and Chief Executive Officer
-
Compensation*
$184,073
-
Chair of the Board
Debora Pellicano
-
Chair's Profession / Business Affiliation
Senior Vice President, Finance, AmerisourceBergen Corporation
-
Board Size
12
-
Paid Staff Size
10
*2018 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Invitations to fund raising events, Cause- related marketing (affinity credit cards, consumer product sales, etc.)
Fundraising costs were 18% of related contributions. (Related contributions, which totaled $1,759,650 are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c) (3) of the Internal Revenue Code.It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on National Alopecia Areata Foundation's audited financial statements for the year ended December 31, 2018.
Source of Funds |
Contributions |
$865,764 |
Grants and sponsorships |
$469,250 |
Fundraising events, net |
$398,376 |
TDP Services |
$176,535 |
Conference registration fees |
$153,090 |
Interest and dividends |
$114,380 |
Publications and community services |
$21,440 |
Realized and unrealized gain on investments |
($201,380) |
Total Income |
$1,997,455 |
- Programs: 82%
- Fundraising: 12%
- Administrative: 6%
Total Income |
$1,997,455 |
Program expenses |
$2,089,909 |
Fundraising expenses |
$315,884 |
Administrative expenses |
$157,896 |
Other expenses |
$0 |
Total expenses: |
$2,563,689 |
Income in Excess of Expenses |
$-566,234 |
Beginning Net Assets |
$3,191,338 |
Other Changes In Net Assets |
$0 |
Ending Net Assets |
$2,650,454 |
Total Liabilities |
$149,162 |
Total Assets |
$2,799,616 |