Myasthenia Gravis Foundation of America
Meets Standards
Standards For Charity Accountability
Governance
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Board Oversight
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Board Size
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Board Meetings
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Board Compensation
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Conflict of Interest
Measuring Effectiveness
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Effectiveness Policy
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Effectiveness Report
Finances
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Program Expenses
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Fundraising Expenses
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Accumulating Funds
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Audit Report
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Detailed Expense Breakdown
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Accurate Expense Reporting
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Budget Plan
Fundraising & Info
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Truthful Materials
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Annual Report
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Website Disclosures
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Donor Privacy
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Cause Marketing Disclosures
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Complaints
Myasthenia Gravis Foundation of America meets the 20 Standards for Charity Accountability.
Stated Purpose:
"to create connections, enhance lives, improve care, and cure MG."
Year, State Incorporated:
1952, NY
Myasthenia Gravis Foundation of America (MGFA) works to provide those with Myasthenia Gravis (MG) and their loved ones with information, education and support. The organization engages in patient advocacy activities, provides resources for support groups, and funds research projects through post-doctoral fellowships and student fellowships. Research funds focus on clinical trials and general research into the cause and cure of MG. MGFA hosts a database, MG Patient Registry, that collects voluntary patient information for the purpose of research, treatment, advocacy, and awareness. In 2025, the organization reports that it hosted over 700 in person and virtual attendees to its annual patient conference.
For the year ended December 31, 2024, Myasthenia Gravis Foundation of America's program expenses were:
Community and patient services: $522,810
Research: $1,652,360
Education and advocacy: $1,372,862
Total Program Expenses: $3,548,032
Chief Executive
Samantha Masterson, President and Chief Executive Officer
Compensation*
$330,726
Chair of the Board
Robert Thomas
Chair's Profession / Business Affiliation
Founder, President and CEO, NUEnergy Payroll HR
Board Size
11
Paid Staff Size
13
*2024 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Internet, Direct mail appeals
Fundraising costs were 11% of related contributions. (Related contributions, which totaled $4,824,285, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Myasthenia Gravis Foundation of America's audited financial statements for the year ended December 31, 2024.
Source of Funds
| Grants and contributions | $4,620,868 |
| Bequests | $203,417 |
| Research contract revenue | $133,332 |
| Investment return | $876,136 |
| Special events, net | $-114,831 |
| Other revenue | $71,341 |
| Total Income | $5,790,262 |
Programs: 76% Fundraising: 11% Administrative: 13%
| Total Income | $5,790,262 |
| Total expenses: | $4,697,133 |
| Program expenses | $3,548,032 |
| Fundraising expenses | $532,503 |
| Administrative expenses | $616,598 |
| Other expenses | $0 |
| Income in Excess of Expenses | $1,093,129 |
| Beginning Net Assets | $10,611,110 |
| Other Changes In Net Assets | $0 |
| Ending Net Assets | $11,704,240 |
| Total Liabilities | $1,848,495 |
| Total Assets | $13,552,735 |
An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.
This report is not to be used for fundraising or promotional purposes.
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Meets Standards
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Standards Not Met
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Review in Progress
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Unable to Verify
Report completed by:
BBB Wise Giving Alliance