The Marfan Foundation reports that it works to advance research for treatments that aim to save lives and improve the quality of life for individuals living with Marfan syndrome, Vascular Ehlers Danlos, Loeys-Dietz, and other genetic aortic conditions. The organization's research grant program provides funds to researchers and scientists specializing in diverse medical fields. The Marfan Foundation also shares information regarding Marfan syndrome and related conditions through webinars, conferences, and partnerships with governmental agencies and other health organizations. Finally, the organization states that it offers a community for those affected by Marfan syndrome through its mentor program, symposiums and educational support through its website.
For the year ended June 30, 2021, Marfan Foundation's program expenses were:
Research initiatives and grants |
$1,836,644 |
Patient services and annual conference |
$1,212,699 |
Education and public awareness |
$908,165 |
Total Program Expenses: |
$3,957,508 |
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Chief Executive
Michael L. Weamer, President and Chief Executive Officer
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Compensation*
$416,319
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Chair of the Board
Cory Eaves
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Chair's Profession / Business Affiliation
Managing Director, Resources Group, General Atlantic
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Board Size
22
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Paid Staff Size
22
*2020 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Invitations to fund raising events, Membership appeals, Planned giving arrangements, Other
Fundraising costs were 15% of related contributions. (Related contributions, which totaled $5,012,348, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c) (3) of the Internal Revenue Code.It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Marfan Foundation's audited financial statements for the year ended June 30, 2021.
Source of Funds |
Special events, net |
$1,923,708 |
Contributions |
$1,676,182 |
Loeys Dietz Syndrome Foundation contribution |
$929,255 |
Investment income, net |
$756,463 |
Government grants |
$491,000 |
Direct response |
$342,421 |
In-kind contributions |
$312,653 |
Community events |
$266,384 |
Conferences and symposia |
$32,819 |
Total Income |
$6,730,885 |
- Programs: 77%
- Fundraising: 14%
- Administrative: 9%
Total Income |
$6,730,885 |
Program expenses |
$3,957,508 |
Fundraising expenses |
$752,891 |
Administrative expenses |
$484,778 |
Other expenses |
$0 |
Total expenses: |
$5,195,177 |
Income in Excess of Expenses |
$1,535,708 |
Beginning Net Assets |
$9,088,443 |
Other Changes In Net Assets |
$166,900 |
Ending Net Assets |
$10,791,051 |
Total Liabilities |
$1,676,488 |
Total Assets |
$12,467,539 |
Note 1: As noted in the above financial section, "other changes in net assets" refers to a change in value of beneficial interest in charitable remainder trust.
Note 2: According to the organization's audited financial statements for the year ended June 30, 2021, The Marfan Foundation received in-kind contributions totaling $312,653 in the form of legal services ($166,713) and advertising ($145,940).