Hydrocephalus Association meets the 20 Standards for Charity Accountability.
Hydrocephalus Association (HA) funds research, provides support and educational resources for patients and caregivers, and advocates on behalf of the hydrocephalus community on key policies and legislation. The provision of support and educational services to those impacted by hydrocephalus includes acting as a source of information, providing social and emotional support, and working with the medical community and other stakeholders to improve care. The organization works to support the hydrocephalus community at all ages and stages of life. The organization's research program is focused on advancing promising avenues of hydrocephalus research and building a committed and connected hydrocephalus research community. Through the support of three research networks and our patient-powered registry, HA has created a research ecosystem aimed at improving the lives of those with hydrocephalus now, while identifying and testing new hypotheses and therapies.
For the year ended December 31, 2020, Hydrocephalus Association's program expenses were:
Public support and education |
$1,234,186 |
Research |
$1,110,703 |
Conferences |
$151,027 |
Advocacy |
$65,847 |
Total Program Expenses: |
$2,561,763 |
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Chief Executive
Diana Gray, President and Chief Executive Officer
-
Compensation*
$213,225
-
Chair of the Board
Brett Weitz
-
Chair's Profession / Business Affiliation
General Manager, TBS, TNT and truTV
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Board Size
20
-
Paid Staff Size
17
*2020 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Invitations to fund raising events, Planned giving arrangements, Cause- related marketing (affinity credit cards, consumer product sales, etc.), Other
Fundraising costs were 3% of related contributions. (Related contributions, which totaled $3,308,426, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c) (3) of the Internal Revenue Code.It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Hydrocephalus Association's audited financial statements for the year ended December 31, 2020.
Source of Funds |
Special events, net |
$1,720,408 |
Grants and contributions |
$1,220,372 |
Paycheck Protection Program funding |
$273,826 |
Donated professional services |
$93,820 |
Conference fees |
$13,090 |
Sale of books, publications, and other items |
$9,378 |
Interest and dividends |
$6,229 |
Investment gain, net |
$5,125 |
Contract revenue |
$4,476 |
Total Income |
$3,346,724 |
- Programs: 80%
- Administrative: 17%
- Fundraising: 3%
Total Income |
$3,346,724 |
Program expenses |
$2,561,763 |
Fundraising expenses |
$103,874 |
Administrative expenses |
$567,580 |
Other expenses |
$0 |
Total expenses: |
$3,233,217 |
Income in Excess of Expenses |
$113,507 |
Beginning Net Assets |
$1,971,080 |
Other Changes In Net Assets |
$0 |
Ending Net Assets |
$2,084,587 |
Total Liabilities |
$666,296 |
Total Assets |
$2,750,883 |
Note: According to HA's 2020 audited financial statements, the organization received in-kind contributions totaling $93,820 in the form of legal counsel.