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CHARITY REVIEW
Issued: June 2024 Expires: June 2026

Lupus Foundation of America

Accredited Charity
Accredited Charity

Meets Standards

Accreditation seal
2121 K Street NW, Suite 200
Washington, DC, 20037

Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

Lupus Foundation of America meets the 20 Standards for Charity Accountability.

Stated Purpose:
"to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy."

Year, State Incorporated:
1977, DC

Lupus Foundation of America (LFA) aims to solve the mystery of lupus while giving support to those who suffer from its impact. Through the organization's National Research Program, LFA stimulates and sponsors basic, clinical, behavioral, translational and epidemiological research on lupus. LFA reports it also leads scientific initiatives, directly funds lupus researchers and advocates for increased government funding of lupus research studies. In addition, the organization works to increase public awareness and understanding of lupus, improve the early diagnosis and treatment of the disease, and help people living with lupus improve their quality of life. For physicians and other health care professionals, LFA conducts and sponsors professional education programs and seminars, in addition to developing educational curriculum for nurses and training clinical investigators on instruments to measure lupus disease activity. Through its national network of affiliated chapters, offices, and community support groups, the organization provides information and education about lupus, direct services through health educators, and live and online educational programs. Some ($1,085,782 or 8%) of LFA's program activities are carried out in conjunction with fundraising appeals.

For the year ended September 30, 2022, Lupus Foundation of America's program expenses were:

Public information and education $6,545,776
Network support and services $3,320,867
Research $3,292,132
Patient education and support $471,771
Professional relations and education $18,699
Total Program Expenses $13,649,245

Chief Executive
Mary T. Crimmings, Interim Chief Executive Officer

Chair of the Board
Joseph A. Arnold

Chair's Profession / Business Affiliation
Vice President, Direct Claims, Brandywine Group of Insurance Reinsurance Companies

Board Size
16

Paid Staff Size
58

*Current compensation information not available for Ms. Crimmings.

 Note: Ms. Crimmings became Interim Chief Executive Officer in November 2022. In 2022, the previous President and Chief Executive Officer, Stevan Gibson, was the highest paid employee, receiving $383,036 in compensation.

Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals, Radio, Print advertisements

LFA incurred joint costs of $1,816,229 for informational materials and activities that included fund raising materials. Of those costs $1,085,782 was allocated to program expenses, $603,773 was allocated to fundraising expenses, and $126,674 was allocated to administrative expenses.

Fundraising costs were 7% of related contributions. (Related contributions, which totaled $17,159,397, are donations received as a result of fundraising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on Lupus Foundation of America's audited financial statements for the year ended September 30, 2022.

Source of Funds
Other income $154
Investment income, net $7,195
Royalty income $54,399
Membership dues $182,206
Paycheck Protection Program loan forgiveness $1,008,591
Program service revenue $1,029,483
In-kind contributions $1,144,715
Wills and bequests $2,226,796
Special events, net $2,641,054
Grants and contributions $9,956,035
Total Income $18,250,628

Programs: 83% Fundraising: 8% Administrative: 9%

Total Income $18,250,628
Total expenses: $16,416,179
  Program expenses $13,649,245
  Fundraising expenses $1,266,722
  Administrative expenses $1,500,212
  Other expenses $0
Income in Excess of Expenses $1,834,449
Beginning Net Assets $3,976,391
Other Changes In Net Assets $-60,234
Ending Net Assets $5,750,606
Total Liabilities $4,078,827
Total Assets $9,829,433

Note 1: As noted in the financial section above, “other changes in net assets” refers to change in value of a perpetual trust held by a trustee.

Note 2: According to the organization's audited financial statements – consolidated – for the year ended September 30, 2022, LFA received in-kind contributions totaling $1,144,715 in the form of advertising ($1,095,529), professional services ($26,813), and donated goods ($22,373).

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

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Report completed by:
BBB Wise Giving Alliance