Lupus Foundation of America
Meets Standards
Standards For Charity Accountability
Governance
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Board Oversight
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Board Size
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Board Meetings
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Board Compensation
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Conflict of Interest
Measuring Effectiveness
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Effectiveness Policy
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Effectiveness Report
Finances
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Program Expenses
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Fundraising Expenses
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Accumulating Funds
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Audit Report
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Detailed Expense Breakdown
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Accurate Expense Reporting
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Budget Plan
Fundraising & Info
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Truthful Materials
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Annual Report
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Website Disclosures
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Donor Privacy
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Cause Marketing Disclosures
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Complaints
Lupus Foundation of America meets the 20 Standards for Charity Accountability.
Stated Purpose:
"to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy."
Year, State Incorporated:
1977, DC
Lupus Foundation of America (LFA) aims to solve the mystery of lupus while giving support to those who suffer from its impact. Through the organization's National Research Program, LFA stimulates and sponsors basic, clinical, behavioral, translational and epidemiological research on lupus. LFA reports it also leads scientific initiatives, directly funds lupus researchers and advocates for increased government funding of lupus research studies. In addition, the organization works to increase public awareness and understanding of lupus, improve the early diagnosis and treatment of the disease, and help people living with lupus improve their quality of life. For physicians and other health care professionals, LFA conducts and sponsors professional education programs and seminars, in addition to developing educational curriculum for nurses and training clinical investigators on instruments to measure lupus disease activity. Through its national network of affiliated chapters, offices, and community support groups, the organization provides information and education about lupus, direct services through health educators, and live and online educational programs. Some ($1,085,782 or 8%) of LFA's program activities are carried out in conjunction with fundraising appeals.
For the year ended September 30, 2022, Lupus Foundation of America's program expenses were:
| Public information and education | $6,545,776 |
| Network support and services | $3,320,867 |
| Research | $3,292,132 |
| Patient education and support | $471,771 |
| Professional relations and education | $18,699 |
| Total Program Expenses | $13,649,245 |
Chief Executive
Mary T. Crimmings, Interim Chief Executive Officer
Chair of the Board
Joseph A. Arnold
Chair's Profession / Business Affiliation
Vice President, Direct Claims, Brandywine Group of Insurance Reinsurance Companies
Board Size
16
Paid Staff Size
58
*Current compensation information not available for Ms. Crimmings.
Note: Ms. Crimmings became Interim Chief Executive Officer in November 2022. In 2022, the previous President and Chief Executive Officer, Stevan Gibson, was the highest paid employee, receiving $383,036 in compensation.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals, Radio, Print advertisements
LFA incurred joint costs of $1,816,229 for informational materials and activities that included fund raising materials. Of those costs $1,085,782 was allocated to program expenses, $603,773 was allocated to fundraising expenses, and $126,674 was allocated to administrative expenses.
Fundraising costs were 7% of related contributions. (Related contributions, which totaled $17,159,397, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Lupus Foundation of America's audited financial statements for the year ended September 30, 2022.
Source of Funds
| Other income | $154 |
| Investment income, net | $7,195 |
| Royalty income | $54,399 |
| Membership dues | $182,206 |
| Paycheck Protection Program loan forgiveness | $1,008,591 |
| Program service revenue | $1,029,483 |
| In-kind contributions | $1,144,715 |
| Wills and bequests | $2,226,796 |
| Special events, net | $2,641,054 |
| Grants and contributions | $9,956,035 |
| Total Income | $18,250,628 |
Programs: 83% Fundraising: 8% Administrative: 9%
| Total Income | $18,250,628 |
| Total expenses: | $16,416,179 |
| Program expenses | $13,649,245 |
| Fundraising expenses | $1,266,722 |
| Administrative expenses | $1,500,212 |
| Other expenses | $0 |
| Income in Excess of Expenses | $1,834,449 |
| Beginning Net Assets | $3,976,391 |
| Other Changes In Net Assets | $-60,234 |
| Ending Net Assets | $5,750,606 |
| Total Liabilities | $4,078,827 |
| Total Assets | $9,829,433 |
Note 1: As noted in the financial section above, “other changes in net assets” refers to change in value of a perpetual trust held by a trustee.
Note 2: According to the organization's audited financial statements – consolidated – for the year ended September 30, 2022, LFA received in-kind contributions totaling $1,144,715 in the form of advertising ($1,095,529), professional services ($26,813), and donated goods ($22,373).
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Standards Not Met
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Review in Progress
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Unable to Verify
Report completed by:
BBB Wise Giving Alliance